October 28, 2008
Trisomy 18
Being the blog stocker I am (usually between the time of 5:00-6:30a.m. or 12:00-2:00p.m. when the children are sleeping). I have come upon countless blogs of families who were affected by trisomy 18, a chromosomal (Can you believe as bad of a speller I am I can actually spell that? It's true, I double checked.) defect. Each and every time they are heart wrenching stories. The love, and grace in these families as they except what God has given them. The joy they experience every day they get to spend with their special babies is absolutely amazing. I have learned about trisomy 18 in my pre nursing classes,but had no idea the number of people(1:3,000) or the effect it truly has on their life's. I stumbled across this video today on someone elses blog. Touching to say the least. Okay, I balled the whole way through. I am not a big Oprah fan. Not that I dis like her. I just don't know that one women should be allowed so much power. We can blog about that another day. But today she is doing a show on miraculous children, and this family is going to be on. So I will be watching today. Just in case you actually had a reason to, and were thinking about calling, DONT! Just kidding you can call if you have some really important news or it's an emergency. Important things to talk about may include things like old Heath Ledger movies (not brokeback mtn). What I can get for free with my coupons. Or where I can sign up to win a million dollars. Still just kidding. Okay,if you watch let me know what you think.
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5 comments:
I've seen this video in the past. Trisomy 18, among many other birth abnormalities is devastating. The healing and comfort families receive through these difficult experiences is amazing. Many families come through stronger despite the agonizing months or years of struggles.
I always enjoy hearing about life experiences. We cannot avoid them, but we can learn together.
Great post!
Oh yes, I saw this video a while back and it made me do the ugly cry! It made me laugh that you didn't want anybody to call you during Oprah, and then they kept having amber alerts during the show...I was just thinking that you jinxed it!
I totally did! I admit when the alarm started to go off during Oprah I was annoyed until I realized it was for an Amber alert. Then I was totally ready to get in my car, drive to Tucson, and find that little girl myself. I actually never saw if they found her. Anyone?
Yes, Anya. There are to many devastating abnormalities to even be able to mention. Trisomy 18 is the one that has caught my attention the most lately. Again I coulnd't even begin to count the number of blogs I have read of families it has affected. I have nothing but love, and admiration for these parents, little babies, and their siblings.
When I was pregnant with Cooper and we found all those issues when we had our 20 week u/s they mentioned he could have this. I freaked. It is so scary and sad. Luckily we were blessed but it has opened my eyes and ears to so many of these issues. Thanks for sharing this.
Oh and I can't stand Oprah anymore either. It has to be a really great show or I am just annoyed by her voice.
I as well have seen that video, I actually followed it for a while. Did you see Friday's show, they were on a again. I have read a lot about trisomy 18 and it is very sad especially on some of my blogs I read.
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